HEAR ME
Maresa: GPA patient, Germany
vasculitis
Coping strategies
Self-care
experiences
Personal stories
Patient support
organisations
What’s new!
It’s Vasculitis Day on 15th May – show your support!
Join our #VasculitisDay social media campaign and share your V for Vasculitis selfie – visit our Facebook page #MyANCAvasculitis. And you can also read and share our Vasculitis Day infographic poster –
click here for more
Rare Revolution Magazine
Check out the May edition of Rare Revolution Magazine – dedicated exclusively to ANCA-associated vasculitis, with a spotlight on our See Me. Hear Me initiative… Read more
European Conference of Rare Disease: two posters presented virtually to mark Vasculitis Day, May 15th
SEE ME. HEAR ME. Support for anyone living with, or affected by, ANCA-associated vasculitis (AAV)… Read more
Management of daily ANCA‐associated vasculitis (AAV) self‐care needs: A suite of new online resources… Read more
Rare Disease Day
Read about all our Rare Disease Day events with AAV patients from Germany and the UK … Read more
Watch our latest videos
A Day in the Life and A Rare Connection - watch Martina and Maresa, two patients from Germany, talk about their personal experiences and how social media brought them together … Read more
This website is designed to help empower anyone living with, or affected by, ANCA-associated vasculitis (AAV).
The website contains:
- Information on the disease, how it is diagnosed and what treatments are available, as well as a section on living with AAV
- Tools that will help you monitor your condition and discuss your condition with your doctor
- First-hand videos an insights from people currently living with AAV
- Tips for carers to overcome the challenges they may face
What is AAV?
Find out about AAV, including information on the different types and possible causes
Diagnosis
Read about how AAV is diagnosed and understand the tests your doctor may carry out
Treatment
& self-care
Discover the treatments you may receive for AAV and how they work, as well as how to self-care
AAV patient association group representatives were involved at every step of the development of the creative initiative and even helped to choose its name SEE ME. HEAR ME and the accompanying artwork from a series of designs created by Shanali – an artist, rheumatologist, and vasculitis patient.
SEE ME. HEAR ME forms part of Vifor Pharma’s mission to help patients around the world with severe and chronic diseases lead better, healthier lives.
Co-created with Patient Association Groups from across Europe, SEE ME. HEAR ME seeks to empower people with AAV and their carers in feeling understood, seen and heard.
Watch the video to learn more.
This website is educational, non-promotional and intended for international audiences, excluding residents of the United States. For more information contact medinfo@viforpharma.com.
HQ-AVA-2000006 / Date of preparation: April 2021 © 2021 Vifor Fresenius Medical Care Renal Pharma