For patients, relatives & friends
Martina: MPA patient, and
Maresa: GPA patient, Germany
Learn more about
Disease information
Coping strategies
Hermann: GPA patient, Germany
Original art
Personal stories
Hellen, GPA patient, Netherlands
Local support
Patient support
Rina, MPA patient, Netherlands

What’s new!

International Vasculitis Day on 15th May 2023 – get involved!

Help raise awareness of AAV & share your experiences by joining the #HearOurStories social media campaign – Find out more

Watch our latest videos of patients, carers and physicians talking about their experiences

Watch our latest videos

A Day in the Life and A Rare Connection - watch Martina and Maresa, two patients from Germany, talk about their personal experiences and how social media brought them together… Read more

EN patient brochure
EN patient brochure

This website is designed to help empower anyone living with, or affected by, ANCA-associated vasculitis (AAV).

The website contains:

  • Information on the disease, how it is diagnosed and what treatments are available, as well as a section on living with AAV
  • Tools that will help you monitor your condition and discuss your condition with your doctor
  • First-hand videos and insights from people currently living with AAV
  • Tips for carers to overcome the challenges they may face
AAV patient AAV patient

What is AAV?

Find out about AAV, including information on the different types and possible causes

AAV MPA patient, Jeremy AAV MPA patient, Jeremy


Read about how AAV is diagnosed and understand the tests your doctor may carry out

AAV EGPA patient, Catherine AAV EGPA patient, Catherine

& self-care

Discover the treatments you may receive for AAV and how they work, as well as how to self-care

AAV GPA patient, John AAV GPA patient, John

Living with AAV

Explore our tips on living with AAV for patients

AAV EPGA patient, Iva, and her carer, Birgitta AAV EPGA patient, Iva, and her carer, Birgitta

I’m a carer

Information for anyone caring for a friend or family member with AAV

AAV Patient Association Group representatives were involved at every step of the development of the creative initiative and even helped to choose its name, SEE ME. HEAR ME and the accompanying artwork from a series of designs created by Shanali – an artist, rheumatologist, and vasculitis patient.

SEE ME. HEAR ME forms part of Vifor Pharma’s mission to help patients around the world with severe and chronic diseases lead better, healthier lives.

Co-created with Patient Association Groups from across Europe, SEE ME. HEAR ME seeks to empower people with AAV and their carers in feeling understood, seen and heard.

Watch the video to learn more.