Introducing
SEE ME
HEAR ME
For patients, relatives
and friends
#myANCAvasculitis
Martina: MPA patient, Germany
Learn more about
ANCA-associated
vasculitis
Disease information
Coping strategies
Self-care
#myANCAvasculitis
Wil: GPA patient, Netherlands
Explore
Patients'
experiences
Original art
Personal stories
#myANCAvasculitis
Jeremy: MPA patient, United Kingdom
Seek
local
support
Events
Patient support
organisations
#myANCAvasculitis
Hellen: GPA patient, Netherlands

This website is designed to help empower anyone living with, or affected by, ANCA-associated vasculitis (AAV).

The content is currently in development. When finished, the complete website will contain:

  • Information on the disease, how it is diagnosed and what treatments are available, as well as a section on living with AAV
  • Tools that will help you monitor your condition and discuss it with your doctor
  • First-hand videos and insights from people currently living with AAV.

What is AAV?

Find out about AAV, including information on the different types and possible causes

Diagnosis

Read about how AAV is diagnosed and understand the tests your doctor may carry out

Treatment
& self-care

Discover the treatments you may receive for AAV and how they work, as well as how to self-care

Living with AAV

Explore our tips on living with AAV for patients

I’m a carer

Information for anyone caring for a friend or family member with AAV

AAV patient association group representatives were involved at every step during the development of the creative initiative and even helped to choose its name SEE ME. HEAR ME and the accompanying artwork from a series of designs created by Shanali Perera – an artist, rheumatologist and vasculitis patient.

SEE ME. HEAR ME forms part of Vifor Pharma’s commitment to help patients with severe and chronic diseases lead better, healthier lives.

Making of video

Co-created with patient association groups, SEE ME. HEAR ME seeks to empower people with AAV and their carers in feeling understood, seen and heard.

Watch the video to learn more.

Please note: video subtitling coming soon

Are you a healthcare professional looking for medical information on AAV?

understandaav.com