For patients, relatives & friends
Martina: MPA patient, and
Maresa: GPA patient, Germany
Learn more about
Disease information
Coping strategies
Hermann: GPA patient, Germany
Original art
Personal stories
Hellen, GPA patient, Netherlands
Local support
Patient support
Rina, MPA patient, Netherlands

What's new!

Easy read brochures about AAV for download

Our easy read brochures are for people living with AAV, and those who care for them. They feature key insights from AAV experts, patient stories and resources.

Rare Disease Day & International Vasculitis Day
Join the #InsideAAV campaign!

We’re inviting people to share their personal journeys and experiences to help raise awareness of AAV. Share your story by joining the #InsideAAV campaign

The new AAV Masterclass is now LIVE!

The ANCA-associated vasculitis (AAV) MASTERCLASS is an educational learning platform that gives you the information you need to understand more about the condition. There are 4 levels of learning, each comprising of 4 step by step modules. They cover topics such as ‘Understanding the Treatment Pathway’, ‘Speaking to your Doctor’ and ‘Connecting with Others’

This website is designed to help empower anyone living with, or affected by, ANCA-associated vasculitis (AAV).

The website contains:

  • Information on the disease, how it is diagnosed and what treatments are available, as well as a section on living with AAV
  • Tools that will help you monitor your condition and discuss your condition with your doctor
  • First-hand videos and insights from people currently living with AAV
  • Tips for carers to overcome the challenges they may face
AAV patient AAV patient

What is AAV?

Find out about AAV, including information on the different types and possible causes

AAV MPA patient, Jeremy AAV MPA patient, Jeremy


Read about how AAV is diagnosed and understand the tests your doctor may carry out

AAV EGPA patient, Catherine AAV EGPA patient, Catherine

& self-care

Discover the treatments you may receive for AAV and how they work, as well as how to self-care

AAV GPA patient, John AAV GPA patient, John

Living with AAV

Explore our tips on living with AAV for patients

AAV EPGA patient, Iva, and her carer, Birgitta AAV EPGA patient, Iva, and her carer, Birgitta

I’m a carer

Information for anyone caring for a friend or family member with AAV

AAV Patient Association Group representatives were involved at every step of the development of the creative initiative and even helped to choose its name, SEE ME. HEAR ME and the accompanying artwork from a series of designs created by Shanali – an artist, rheumatologist, and vasculitis patient.

SEE ME. HEAR ME forms part of Vifor Pharma’s mission to help patients around the world with severe and chronic diseases lead better, healthier lives.

Co-created with Patient Association Groups from across Europe, SEE ME. HEAR ME seeks to empower people with AAV and their carers in feeling understood, seen and heard.

Watch the video to learn more.