This webpage has been created and funded by CSL Vifor. This website is educational, non-promotional and intended for United Kingdom and Ireland residents. For more information, contact medinfo@viforpharma.com.

Introducing
SEE ME
HEAR ME
For patients, relatives & friends
#myANCAvasculitis
Martina: MPA patient
Learn more about
ANCA-associated
vasculitis
Disease information
Coping strategies
Self-care
#myANCAvasculitis
Hermann: GPA patient, Germany
Explore
Patients'
experiences
Original art
Personal stories
#myANCAvasculitis
Hellen, GPA patient, Netherlands
Seek
Local support
Events
Patient support
organisations
#myANCAvasculitis
Rina, MPA patient, Netherlands

Easy read brochures about AAV for download

Our easy read brochures are for people living with AAV, and those who care for them. They feature key insights from AAV experts, patient stories and resources.

This website is designed to help empower anyone living with, or affected by, ANCA-associated vasculitis (AAV).

The website contains:

  • Information on the disease, how it is diagnosed and what treatments are available, as well as a section on living with AAV
  • Tools that will help you monitor your condition and discuss your condition with your doctor
  • First-hand videos and insights from people currently living with AAV
  • Tips for carers to overcome the challenges they may face

What is AAV?

Find out about AAV, including information on the different types and possible causes

AAV MPA patient, Jeremy AAV MPA patient, Jeremy

Diagnosis

Read about how AAV is diagnosed and understand the tests your doctor may carry out

AAV EGPA patient, Catherine AAV EGPA patient, Catherine

Self-care

Discover how self-care and setting goals can support daily management

AAV GPA patient, John AAV GPA patient, John

Living with AAV

Explore our tips on living with AAV for patients

AAV EPGA patient, Iva, and her carer, Birgitta AAV EPGA patient, Iva, and her carer, Birgitta

I’m a carer

Information for anyone caring for a friend or family member with AAV

AAV Patient Association Group representatives were involved at every step of the development of the creative initiative and even helped to choose its name, SEE ME. HEAR ME and the accompanying artwork from a series of designs created by Shanali – an artist, rheumatologist, and vasculitis patient.

SEE ME. HEAR ME forms part of CSL Vifor's mission to help patients around the world with severe and chronic diseases lead better, healthier lives.

Co-created with Patient Association Groups from across Europe, SEE ME. HEAR ME seeks to empower people with AAV and their carers in feeling understood, seen and heard.

Watch the video to learn more.

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